Patientengeschichten, Literatur

E-Bibliothek Gesundheitskompetenz des DNGK

Fachliteratur Patientengeschichten

Hier finden Sie die in der Datenbank des DNGK eingestellten Fachartikel zum Thema Patientengeschichten / Krankheitserfahrungen / Narrative Medizin.

Adams, Mary, et al. “Exploring the Legacies of Filmed Patient Narratives: The Interpretation and Appropriation of Patient Films by Health Care Staff.” Qualitative Health Research, vol. 25, no. 9, Sept. 2015, pp. 1241–50, http://doi.org/10.1177/1049732314566329.
Bekker, Hilary L., et al. “Do Personal Stories Make Patient Decision Aids More Effective? A Critical Review of Theory and Evidence.” BMC Medical Informatics and Decision Making, vol. 13 Suppl 2, 2013, p. S9, http://doi.org/10.1186/1472-6947-13-S2-S9.
Blödt, Susanne, et al. “Understanding the Role of Health Information in Patients’ Experiences: Secondary Analysis of Qualitative Narrative Interviews with People Diagnosed with Cancer in Germany.” BMJ Open, vol. 8, no. 3, 12 2018, p. e019576, http://doi.org/10.1136/bmjopen-2017-019576.
Boyd, Kerry, et al. "Consumer inclusion: Experience of patients with intellectual and developmental disabilities informs primary care." Canadian Family Physician Medecin De Famille Canadien, vol. 64, no. Suppl 2, 2018, pp. S8–11,
Breuning, Martina, et al. "Subjektive Krankheitserfahrungen und Patientenorientierung." Bundesgesundheitsblatt - Gesundheitsforschung - Gesundheitsschutz, vol. 60, no. 4, Apr. 2017, pp. 453–61, doi:10.1007/s00103-017-2524-y.
Breuning, Martina, et al. “Connecting One’s Own Illness Story to the Illness Experiences of Others on a Website-An Evaluation Study Using the Think Aloud Method.” Patient Education and Counseling, vol. 103, no. 1, Jan. 2020, pp. 199–207, http://doi.org/10.1016/j.pec.2019.08.014.
Charon, Rita. “At the Membranes of Care:  Stories in Narrative Medicine.” Academic Medicine: Journal of the Association of American Medical Colleges, vol. 87, no. 3, Mar. 2012, pp. 342–47, http://doi.org/10.1097/ACM.0b013e3182446fbb.
Charon, R. “The Patient-Physician Relationship. Narrative Medicine: A Model for Empathy, Reflection, Profession, and Trust.” JAMA, vol. 286, no. 15, Oct. 2001, pp. 1897–902, http://doi.org/10.1001/jama.286.15.1897.
Coulter, Angela, et al. “Collecting Data on Patient Experience Is Not Enough: They Must Be Used to Improve Care.” BMJ (Clinical Research Ed.), vol. 348, Mar. 2014, p. g2225, http://doi.org/10.1136/bmj.g2225.
Engler, Jennifer, et al. “Using Others’ Experiences. Cancer Patients’ Expectations and Navigation of a Website Providing Narratives on Prostate, Breast and Colorectal Cancer.” Patient Education and Counseling, vol. 99, no. 8, 2016, pp. 1325–32, http://doi.org/10.1016/j.pec.2016.03.015.
Entwistle, Vikki Ann, et al. “How Information about Other People’s Personal Experiences Can Help with Healthcare Decision-Making: A Qualitative Study.” Patient Education and Counseling, vol. 85, no. 3, Dec. 2011, pp. e291-298, http://doi.org/10.1016/j.pec.2011.05.014.
Fioretti, Chiara, et al. “Research Studies on Patients’ Illness Experience Using the Narrative Medicine Approach: A Systematic Review.” BMJ Open, vol. 6, no. 7, 14 2016, p. e011220, http://doi.org/10.1136/bmjopen-2016-011220.
Gidman, Janice. “Listening to Stories: Valuing Knowledge from Patient Experience.” Nurse Education in Practice, vol. 13, no. 3, May 2013, pp. 192–96, http://doi.org/10.1016/j.nepr.2012.09.006.
Giesler, Jürgen M., et al. “Effect of a Website That Presents Patients’ Experiences on Self-Efficacy and Patient Competence of Colorectal Cancer Patients: Web-Based Randomized Controlled Trial.” Journal of Medical Internet Research, vol. 19, no. 10, 13 2017, p. e334, http://doi.org/10.2196/jmir.7639.
Greenhalgh, Trisha, et al. “Six ‘biases’ against Patients and Carers in Evidence-Based Medicine.” BMC Medicine, vol. 13, Sept. 2015, p. 200, http://doi.org/10.1186/s12916-015-0437-x.
Grob, Rachel, et al. “What Words Convey: The Potential for Patient Narratives to Inform Quality Improvement.” The Milbank Quarterly, vol. 97, no. 1, 2019, pp. 176–227, http://doi.org/10.1111/1468-0009.12374.
Heimes, S. “Storytelling im Gesundheitsjournalismus: Onlinebefragung von Fachjournalisten über Definition und Anwendung.” Gesundheitswesen (Bundesverband Der Arzte Des Offentlichen Gesundheitsdienstes (Germany)), vol. 78, no. 12, Dec. 2016, pp. 852–54, http://doi.org/10.1055/s-0042-100623.
Kelly, Laura, et al. “Measuring the Effects of Online Health Information: Scale Validation for the e-Health Impact Questionnaire.” Patient Education and Counseling, vol. 98, no. 11, Nov. 2015, pp. 1418–24, http://doi.org/10.1016/j.pec.2015.06.008.
Kidd, Jo, and Sue Ziebland. “Narratives of Experience of Mental Health and Illness on Healthtalk.Org.” BJPsych Bulletin, vol. 40, no. 5, Oct. 2016, pp. 273–76, http://doi.org/10.1192/pb.bp.115.052217.
Kokanović, Renata, and Jacinthe Flore. "Subjectivity and illness narratives." Subjectivity, vol. 10, no. 4, Dec. 2017, pp. 329–39, doi:10.1057/s41286-017-0038-6.
Marsters, Meaghan, and S. Meaghan Sim. “Stories like Tara’s: Advocating the Value of Public Health through Narrative and Reflection.” Canadian Journal of Public Health = Revue Canadienne De Sante Publique, vol. 110, no. 3, 2019, pp. 314–16, http://doi.org/10.17269/s41997-019-00199-z.
Mazanderani, Fadhila, et al. “‘People Power’ or ‘Pester Power’? YouTube as a Forum for the Generation of Evidence and Patient Advocacy.” Patient Education and Counseling, vol. 93, no. 3, Dec. 2013, pp. 420–25, http://doi.org/10.1016/j.pec.2013.06.006.
Morrise, Lisa, and Katy Jo Stevens. “Training Patient and Family Storytellers and Patient and Family Faculty.” The Permanente Journal, vol. 17, no. 3, 2013, pp. e142-145, http://doi.org/10.7812/TPP/12-059.
Newell, Stephanie, and Zoe Jordan. “The Patient Experience of Patient-Centered Communication with Nurses in the Hospital Setting: A Qualitative Systematic Review Protocol.” JBI Database of Systematic Reviews and Implementation Reports, vol. 13, no. 1, 2015, pp. 76–87, http://doi.org/10.11124/jbisrir-2015-1072.
Palant, Alexander, and Wolfgang Himmel. “Are There Also Negative Effects of Social Support? A Qualitative Study of Patients with Inflammatory Bowel Disease.” BMJ Open, vol. 9, no. 1, 21 2019, p. e022642, http://doi.org/10.1136/bmjopen-2018-022642.
Ragan, Sandra L., and Elisa Kanter. “Learning the Patient’s Story.” Seminars in Oncology Nursing, vol. 33, no. 5, 2017, pp. 467–74, http://doi.org/10.1016/j.soncn.2017.09.003.
Reimann, Swantje, and Daniel Strech. “The Representation of Patient Experience and Satisfaction in Physician Rating Sites. A Criteria-Based Analysis of English- and German-Language Sites.” BMC Health Services Research, vol. 10, Dec. 2010, p. 332, http://doi.org/10.1186/1472-6963-10-332.
Remein, Christy DiFrances, et al. “Content and Outcomes of Narrative Medicine Programmes: A Systematic Review of the Literature through 2019.” BMJ Open, vol. 10, no. 1, Jan. 2020, p. e031568, http://doi.org/10.1136/bmjopen-2019-031568.
Richards, Dawn P. “Don’t Call My Experience a ‘Patient Story.’” BMJ (Clinical Research Ed.), vol. 368, Feb. 2020, p. m414, http://doi.org/10.1136/bmj.m414.
Roebotham, Taylor, et al. “Beyond Catharsis: The Nuanced Emotion of Patient Storytellers in an Educational Role.” Medical Education, vol. 52, no. 5, 2018, pp. 526–35, http://doi.org/10.1111/medu.13510.
Sillence, Elizabeth, et al. “How Do Carers of People with Multiple Sclerosis Engage with Websites Containing the Personal Experiences of Other Carers and Patients?” Health Informatics Journal, vol. 22, no. 4, 2016, pp. 1045–54, http://doi.org/10.1177/1460458215607938.
Winkel, Abigail Ford. “Narrative Medicine: A Writing Workshop Curriculum for Residents.” MedEdPORTAL: The Journal of Teaching and Learning Resources, vol. 12, Nov. 2016, p. 10493, http://doi.org/10.15766/mep_2374-8265.10493.
Woudstra, Anke Judith, and Jeanine Suurmond. “How Narratives Influence Colorectal Cancer Screening Decision Making and Uptake: A Realist Review.” Health Expectations: An International Journal of Public Participation in Health Care and Health Policy, vol. 22, no. 3, 2019, pp. 327–37, http://doi.org/10.1111/hex.12892.
Yaffe, Mark J., et al. “Use of Patients’ Unsolicited Correspondence to a Family Doctor to Describe and Understand Valued Components of a Doctor-Patient Relationship: A Hermeneutics Approach.” BMC Family Practice, vol. 20, no. 1, 17 2019, p. 136, http://doi.org/10.1186/s12875-019-1024-6.
Zaharias, George. "Learning narrative-based medicine skills." Canadian Family Physician, vol. 64, no. 5, May 2018, pp. 352–56,
Zaharias, George. "What is narrative-based medicine? Narrative-based medicine." Canadian Family Physician Medecin De Famille Canadien, vol. 64, no. 3, 2018, pp. 176–80,
Ziebland, Sue, and Kate Hunt. “Using Secondary Analysis of Qualitative Data of Patient Experiences of Health Care to Inform Health Services Research and Policy.” Journal of Health Services Research & Policy, vol. 19, no. 3, July 2014, pp. 177–82, http://doi.org/10.1177/1355819614524187.
Ziebland, Sue, and Ann McPherson. “Making Sense of Qualitative Data Analysis: An Introduction with Illustrations from DIPEx (Personal Experiences of Health and Illness).” Medical Education, vol. 40, no. 5, May 2006, pp. 405–14, http://doi.org/10.1111/j.1365-2929.2006.02467.x.
Ziebland, Sue, and Sally Wyke. “Health and Illness in a Connected World: How Might Sharing Experiences on the Internet Affect People’s Health?” The Milbank Quarterly, vol. 90, no. 2, June 2012, pp. 219–49, http://doi.org/10.1111/j.1468-0009.2012.00662.x.
Ziebland, Sue, et al. “The Role of the Internet for People with Chronic Pain: Examples from the DIPEx International Project.” British Journal of Pain, vol. 9, no. 1, Feb. 2015, pp. 62–64, http://doi.org/10.1177/2049463714555438.
DIPex Schweiz. Accessed 18 Mar. 2020.
DIPex España. Accessed 18 Mar. 2020.

 

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  • Autoren: Team DNGK
  • Letzte Überarbeitung: 18. 3. 2020